One of Lil's special friends Alf has written a beautiful song for her called Lullaby. Please click here to listen.
What a nice, normal week for Kahlilla. She has her dancing class, then her musical munchkins, then kindi on Fridays.
Kindi has been extra special because Mum lets Lill stay there all by herself with just the other kids and teachers.
Kahlilla is growing up into a great kid and a beautiful little friend. She is kind and generous and cheeky and considerate...
and she loves a laugh. She also adores her family and is extremely affectionate handing out cuddles and big squeezes
all the time. She wakes up fresh and happy each day and tells you about her dreams - usually butterflies, fairies,
nice dragons and rainbows.
Kahlilla is also a normal kid with sulky moments and little tantrums that are always short lived. She loves her animals
and is always thrilled to see that the chooks have laid their daily eggs (Although Romy suffered during a recent
heatwave and has not laid since - we may have to sit her down and
show her the movie, Chicken Run, so she can see what Mrs Tweedy does to chooks who don't lay eggs!)
Kahlilla also loves the moon and stars, sunsets and the wind and rain, often asking to be whisked outside
during a rainstorm so she can open her mouth and catch some rain drops. Lill loves tickles and has a
wicked, infectious chuckle.
Well.... enough gushing over the kid.... now.... by popular demand .....here is a snap of her Mum and Colin.
Mum was a knockout (left) .. and Colin (right) wore his skirt all weekend
We all went to the birthday party of our great friend Lou last night. It was an outrageous fancy dress.
Lill dressed up as a unicorn,
Indi a dragon, Mum was Foxy Cleopatra and Colin was a woman (In a very fetching black mini)
A great shot of the girls can be found below, but Mum and Colin can only be found at this website ..... girlswithboysinterribledrag.com.fishnets.org.net.de
Our party girls
We received the most excellent news from the hospital today. Kahlilla's wee wee is normal. Active neuroblastoma
cells have a waste product called catecholamines which shows itself in the wee wee. So Kahlilla is OK!!!!! We are not sure why her
MIBG scan showed signs of activity, but we hope to hear a few theories during our next hospital visit, in our attempt to
understand this cancer more fully.
Kahlilla spent the first day of her new year with her Nanny and had a great day indeed, spending most of it on
her new, enormous trampoline.
"Take a photo of me please Nanny"
"Bacon and eggs for lunch....mmmmm"
Later in the day, Kahlilla opened all her presents from yesterday, beacause she was having too much
fun during her party to open them then.
Kahlilla is 4 years Old Today!!!
Happy Birthday Precious Girl
Kahlilla turned 4 today and we had a huge party!
Our Party Girl
At one stage, everyone was given a black balloon and we all released them at the same time. The balloons flew into
the air and slowly disappeared from view - Never to be seen again
Bye Bye Black Balloons
The kids had an amazing sea life experience with Deep Sea Debbi. Debbi operates a mobile
zoo full of sea creatures, and she gave a presentation to the Starlight Room about one year ago where she met
Colin volunteering to hold the octopus
Debbi kindly accepted a request to set up her incredible zoo at Kahlilla's party at short notice. All the kids were enthralled
at the starfish, crabs, sharks and octopii. Thankyou so much Debbi for your help and kindness today.
Please feel free to check out Debbi's deep sea web site by clicking here
Nanny made an awesome cake
"Aunt Jess and Darci, Lou and Mum as Fairy Princesses
Col was Backwards Man
***Kahlilla's birthday reminds us that it is Samantha Hughes' birthday also.
Have a beautiful, happy day Sammy.
You can find Sammy by clicking here
Lill is going well apart from a fever and a snotty nose. She hit 38 degrees!!!! A walk in the park after her PB of over 41 degrees.
We are down to one mouse
We are down to one whale also
Today was the big trip into Melbourne for Lill's monthly check up at the hospital. Lill's doctor was a little concerned about an
irregularity (Hot Spot) on her MIBG scan a month ago, so he ordered an X Ray be done on Kahlilla's left femur.
Lill was just annoyed because she wanted to go to the Starlight Room. Nell was beside herself with shock.
After a couple of agonizing hours of waiting, the doctor declared that the X Ray was all clear. They are doing a few more tests and we will find out
what is going on in a week or so.
It is all a little vague and we are feeling a bit numb.... Please keep Kahlilla in your thoughts and prayers...Thank you.
Kahlilla's friends Megan and Alf were married today in a charming ceremony at a country homestead, followed by a wild party.
Indigo and kahlilla were flower girls.
The flower girls did such a good job spreading petals on the ground for Megan
A gentle hug from Kahlilla
Such a pity Lill was in bed when this beautiful snap was.... snapped
Lill was a little tired but a few hours sleep after the ceremony brought her back to life and she was soon dancing with the gang.
At around 10pm, it was all too much and Kahlilla found a suitable spot to collapse on her beloved blankie
We must thank Alf and Megan for including us in their special day and we wish for them a happy and healthy life together.
Lill finally had a bowel movement after various medicines and bum bullets. She is still not right but much bettter
Lilly looking after her friend Toli - check out the shower caps on this girl's feet!
Doctor and patient reunited after surgery
Lill has been a little off these past few days. Tummy and back aches and no jobbies. We are trying our best not to think back to November 1.
It was Col's birthday today and we had a party in the evening.